August 10, 2012
by Stout Family on 08/10/12
Noah had an MRI on August 3rd and once again, results showed no tumor progression and no hydrocephalus. We had a scary moment a few weeks before his MRI. At 2:00 AM July 27th, Noah had a 105 degree fever so we rushed him to the ER. We also called our Minister Bro. Matthew Capistrano who immediately came to the hospital that early morning to pray and anoint Noah with oil. By 1:00pm the same day, his fever was completely gone and never came back. To make sure Noah was completely OK he was admitted to UCSF to continue the antibiotic that was being administered through his catheter. Doctors at UCSF couldn’t source his fever so we were discharged on July 30th and home with Noah’s sister’s Giana and Leila who we missed so very much. During our stay at UCSF we also met with Endocrinologists who gave us a tapering schedule to wean Noah off of his steroids. They also took him off of Decadron and changed his steroid to Hydrocortisone because it is easier to taper. I learned that 1mg of Decadron was equivalent to 50mg of Hydrocortisone which is no wonder why it affected Noah so drastically. We noticed that after Noah’s fever episode, he gained right side strength as he’s standing up on his own, and back to using his right hand to play with his Nintendo DS and laptop. The temperature of his right leg and right hand are the same as the rest of his body (they used to be cold), which tells us his blood is circulating better. His physical therapist was very happy to see these changes and says Noah is really improving. We are so thankful to God for the over-all good results and thankful for your continuous prayers.
